The Big Care Survey

The Government announced last year that it will be looking at social care reform in 2018. As part of the process, they want to hear from care users and carers so that they get a picture of what the system is like today and what the people it impacts want to see changed.

We want to hear from as many people who have experience with adult social care in England to be able to tell them what it looks like now and what needs to change, so we’ve launched a survey.

We want to hear from you if you need social care or are a carer who cares for someone who needs social care. As a carer, you may also need support yourself, and we want you to respond from your perspective too. We want to get as many voices of those impacted by the crisis in social care today, so please take the time to do our survey – it takes about 15 minutes and you can remain anonymous if you’d like to.

Care and Support Alliance

What’s the survey for?
The Government has promised to change the adult social care system in England to make it fit for the future. We want the Government to hear the experiences of people and their families who have needed adult care and support. Please take 15 minutes to complete our short survey to tell us about your experience.

What is social care?
Social care is help, care and support for people with a wide variety of needs due to disability, illness, caring responsibilities or other life situations.

It can include:
– Help with everyday tasks: washing, dressing and eating
– Care at home; living in a care home, or living in sheltered accommodation
– Home adaptations; support for people of working age to get into or stay in employment
– Support for unpaid carers or family members

How will your answers be used? 
The Care & Support Alliance will use these results as part of our campaigning work. We represent over 80 of Britain’s leading charities campaigning for a properly funded care system alongside the millions of older people, disabled people and their carers who deserve decent care and support.

Responses will not be used in a way to that identifies any individual or family publicly. Data given will be held securely and deleted when no longer needed. But if you would like to share your story more widely, there is an opportunity at the end to give us your contact details.

Most GPs would agree to end life – assisted dying

More than half of GPs would be willing to help a patient die if it was legal, a survey has revealed.

Just a year ago a poll showed far fewer – 19 per cent – would be prepared to assist in a suicide. The new survey also found that, for the first time, a majority of doctors do not oppose an Assisted Dying Bill.

Charity Dignity in Dying said the results were a landmark in the campaign to change the law so medics could help terminally ill patients end their lives if they wished.

They come after the high-profile death of tumour patient Jeffrey Spector, 54, of Lytham, Lancs, at a Swiss Dignitas clinic.

The father of three posed for photos at an emotional final meal with his family and friends before doctors helped him to die.

Dignity in Dying chief executive Sarah Wootton said: “The law has to change.

“Dying Britons are being forced to take matters into their own hands simply to have control over their own death.

“We need to treat terminally ill people with compassion and as doctors we should be respecting patient choice and allow people to have the death that they want.”

Of 1,000 doctors who participated in the poll by MedeConnect medical researchers, 54 per cent said they would be prepared to be involved in assisted dying.

Nearly a third of those polled were in favour of a change in the law.

A parallel survey of more than 5,000 patients found that 86 per cent of people would have increased trust in doctors if assisted dying were legal.

Dr Wooton added: “It should come as no surprise that patients would trust their doctors more if they supported assisted dying because this would allow for more honest, open end-of-life discussions.”

BMAThe British Medical Association – the doctor’s union – opposes a change in the law. Progress of an Assisted Dying Bill being discussed in the House of Lords was halted when the General Election was called.

Boudicca F-L 2015.  Sunday Mirror 31st May 2015  P.23

“My mother was in an appalling state before she died, through dementia, and didn’t have the capacity to ask for the chance of an assisted death. I would have seen it as a true kindness to have helped her pass over, well before, gratefully, a coronary thrombosis took her”